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State Use of Experience of Care Surveys for Beneficiaries Using Long-Term Services and Supports


DOMAIN: Patient-Centered Care

This measure reports on states’ use of three experience of care surveys administered to long-term services and support (LTSS) beneficiaries. Surveys included in the count are:

  • CAHPS Home and Community-Based Services Survey (HCBS CAHPS)
    HCBS CAHPS is a cross-disability survey of HCBS beneficiaries’ experience receiving LTSS. The survey is designed to facilitate comparisons across state Medicaid HCBS programs that target adults with disabilities, including frail elderly, individuals with physical disabilities, persons with developmental or intellectual disabilities, those with acquired brain injury and persons with severe mental illness. Please refer to CAHPS Home and Community-Based Services Survey for more information.
  • National Core Indicators (NCI) In-Person Survey
    NCI is a collaborative effort by developmental disability agencies to gather a standard set of performance and outcome measures on individuals with intellectual or developmental disabilities. Please refer to National Core Indicators for more information.
  • National Core Indicators for Aging and Disabilities (NCI-AD)
    NCI-AD is a collaborative effort by state Medicaid, aging, and disability agencies to gather a standard set of performance and outcome measures on older adults and individuals with physical disabilities. Please refer to National Core Indicators Aging and Disabilities for more information.

Administration of the three surveys is voluntary. States vary in how often they administer surveys and the proportion of the LTSS population covered by surveys. The count below includes surveys administered since 2019. Due to the COVID-19 public health emergency, states paused administering the NCI-AD survey during the 2020-2021 reporting cycle. States may also use other surveys to understand the experiences of their LTSS beneficiaries.

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State Use of Experience of Care Survey for Beneficiaries Using LTSS US Map with the categories and values

State Use of Experience of Care Surveys for Beneficiaries Using Long-Term Services and Supports

Map with the categories and values:

State COUNT
Alabama 2
Alaska 1
Arizona 2
Arkansas 1
California 1
Colorado 2
Connecticut 2
Delaware 3
Florida 2
Georgia 1
Hawaii 1
Idaho 0
Illinois 2
Indiana 2
Iowa 0
Kansas 3
Kentucky 1
Louisiana 0
Maine 1
Maryland 0
Massachusetts 1
Michigan 2
Minnesota 2
Mississippi 0
Missouri 2
Montana 0
Nebraska 2
Nevada 1
New Hampshire 1
New Jersey 2
New Mexico 0
New York 1
North Carolina 1
North Dakota 0
Ohio 2
Oklahoma 1
Oregon 2
Pennsylvania 2
Rhode Island 1
South Carolina 2
South Dakota 2
Tennessee 2
Texas 1
Utah 2
Vermont 2
Virginia 1
Washington 2
Washington, D.C. 1
West Virginia 1
Wisconsin 2
Wyoming 1
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51 states reporting, median rate of 1 patient experience survey.

Source: Data on states’ HCBS CAHPS administration status were verified by the Centers for Medicare & Medicaid Services (CMS).  Data reflect administration between 2019 and 2021 to Medicaid fee-for-service populations and to managed LTSS populations. CMS was not able to verify information for Hawaii, Illinois, Kentucky, Mississippi, Montana, Oklahoma, Virginia, or Washington D.C. Data on states’ NCI administration come from NCI administrative records and reflect administration during the 2019-2020 and 2020-2021 reporting cycles. Data on states’ NCI-AD administration come from NCI-AD administrative records and reflect administration during the 2019-2020 reporting cycle.